From the initial moment you’re diagnosed with FSGS, life becomes uncertain. Will you find a treatment that works? Or will you eventually need dialysis, or even a kidney transplant? Trying to carry on your normal life while facing this worry can be difficult.
As you know, FSGS is a rare disease that attacks the kidney’s filtering units, causing serious scarring that leads to permanent kidney damage and even failure. Each kidney is made up of approximately one million tiny filters called “glomeruli.” Much as coffee filters hold in coffee grounds, glomeruli filter the blood, taking out the water-like waste, which becomes urine, and leaving the protein in the blood. When glomeruli become damaged or scarred (sclerosis), proteins begin leaking into the urine (proteinuria). The word “focal” is used because in FSGS, only some of the glomeruli filters become scarred. “Segmental” means that only some sections of an affected glomerulus become scarred.
While there is no cure for FSGS, some treatments can slow the decline of kidney function and, in some cases, even reverse kidney damage. Right now, research is underway to determine whether H.P. Acthar® Gel (repository corticotropin injection) is helpful for adult patients with FSGS who still have an abnormal amount of protein in their urine, despite prior treatment. And you may be able to take part.
Learn more about the PODOCYTE Study.
See If You May Qualify